Hi! I'm back

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  • paige
    Member
    • Apr 2007
    • 234

    Hi! I'm back

    I'm back and I actually have very good news. Though, illogically enough, even the good news has me feeling frustrated and rather embarrassed.

    After ten days on the seizure ward, the doctors finally decided that I don't have epilepsy but a combination of very strange and severe migraine headaches, and bad reaction to the anti-convulsant drugs I'd been put on. I'd been taking these medications for years! I've been referred to a different specialist for the migraines, don't know when/what to expect though.

    Thanks to everyone who wished me luck, and wished me well.
  • Jundo
    Treeleaf Founder and Priest
    • Apr 2006
    • 39075

    #2
    Hello Paige,

    Welcome home, and I am very happy to hear your news. Medicine is more an art than a science so often, and sometimes the 'cure' turns out to be the disease.

    If you do not know it, you should read this book on Migraine, and their connection to a mystical frame of mind, by Oliver Sacks (the famous neurologist who, among other things, was featured in the movie 'Awakenings' with Robert Diniro).

    http://www.amazon.com/Migraine-Oliver-S ... 037570406X

    The many manifestations of migraine can vary dramatically from one patient to another, even within the same patient at different times. Among the most compelling and perplexing of these symptoms are the strange visual hallucinations and distortions of space, time, and body image which migraineurs sometimes experience. Portrayals of these uncanny states have found their way into many works of art, from the heavenly visions of Hildegard von Bingen to Alice in Wonderland. Dr. Oliver Sacks argues that migraine cannot be understood simply as an illness, but must be viewed as a complex condition with a unique role to play in each individual's life.
    Gassho, Jundo
    ALL OF LIFE IS OUR TEMPLE

    Comment

    • will
      Member
      • Jun 2007
      • 2331

      #3
      Paige
      After ten days on the seizure ward, the doctors finally decided that I don't have epilepsy but a combination of very strange and severe migraine headaches, and bad reaction to the anti-convulsant drugs I'd been put on. I'd been taking these medications for years! I've been referred to a different specialist for the migraines, don't know when/what to expect though.
      Whew. Yikes. Well, goodluck with the new specialist. Good to see your Back.

      Gassho[/quote]
      [size=85:z6oilzbt]
      To save all sentient beings, though beings are numberless.
      To penetrate reality, though reality is boundless.
      To transform all delusion, though delusions are immeasurable.
      To attain the enlightened way, a way non-attainable.
      [/size:z6oilzbt]

      Comment

      • will
        Member
        • Jun 2007
        • 2331

        #4
        double post. woops
        [size=85:z6oilzbt]
        To save all sentient beings, though beings are numberless.
        To penetrate reality, though reality is boundless.
        To transform all delusion, though delusions are immeasurable.
        To attain the enlightened way, a way non-attainable.
        [/size:z6oilzbt]

        Comment

        • Don Niederfrank
          Member
          • Jul 2007
          • 66

          #5
          I think that's good news. I think any time someone reduces the amount of pharmcuticals one is taking, that's a good thing.

          I hope your head doesn't hurt too much or too often.

          I'd like to be kept posted as to how you're doing.
          Un otro mundo es possible, si...

          Comment

          • Fuken
            Member
            • Sep 2006
            • 435

            #6
            Good to have you back.

            My cousin, (a Doctor) once told me that Doctors "practice" medicine. If they were good they would not need to practice!

            Welcome to the migraine club :wink:
            I have "hot dog" headaches which is basically a nitrate induced migraine.
            As long as I watch what I eat and drink I am usually fine. But I slip up every now and then and pay the price.

            But I know there are all kinds of migraines, some are more easy to avoid than others.

            I hope you get an easy one!

            Take care,
            Jordan
            Yours in practice,
            Jordan ("Fu Ken" translates to "Wind Sword", Dharma name givin to me by Jundo, I am so glad he did not name me Wind bag.)

            Comment

            • Keishin
              Member
              • Jun 2007
              • 471

              #7
              I'm back

              oops

              Comment

              • Keishin
                Member
                • Jun 2007
                • 471

                #8
                I'm back

                Hellos and a hug to you, Paige!!
                Good to see you here again. Your name has come up in a couple of comments (Sanghas, sanghas everywhere for one)
                Isn't it fascinating--these medical re-interpretations--Drs love good medical puzzles--you may end up in an abstract!!

                gassho
                your sangha sista
                keishin

                Comment

                • Keishin
                  Member
                  • Jun 2007
                  • 471

                  #9
                  I'm back

                  oops x 2

                  Comment

                  • Rev R
                    Member
                    • Jul 2007
                    • 457

                    #10
                    Welcome back, good to see your smiling face.

                    R

                    Comment

                    • Ryumon
                      Member
                      • Apr 2007
                      • 1691

                      #11
                      Congrats, sort of. I know that the side effects of anti-epileptics can be quite something. It's kind of strange, though, that you were given those meds without a firm diagnosis - generally, they don't give them to people unless they have had multiple seizures.

                      Migraines can be a pain - I don't have them, but I get similar headaches. Do know, however, that there are some pretty good meds to stave them off.

                      Best of luck!

                      Kirk
                      ---
                      Ryūmon (Kirk)
                      流文

                      SAT/LAH

                      I know nothing.

                      Comment

                      • Dainin
                        Member
                        • Sep 2007
                        • 353

                        #12
                        Hi Paige,

                        Welcome back! I am happy to know that you don't have epilepsy. I look forward to more of your posts.

                        Gassho,
                        Keith

                        Comment

                        • Bansho
                          Member
                          • Apr 2007
                          • 532

                          #13
                          Hi Paige,

                          Glad you're back -- and I hope very much that your physicians will finally find a treatment that's appropriate for you.

                          Gassho
                          Kenneth
                          ??

                          Comment

                          • Jun
                            Member
                            • Jun 2007
                            • 236

                            #14
                            Welcome back Paige.
                            Gassho
                            Jun
                            The life and teachings of Suzuki Shõsan Rõshi - http://kongoshin.blogspot.com/

                            Comment

                            • Gregor
                              Member
                              • Apr 2007
                              • 638

                              #15
                              Good to have you back, and I'm glad that your back home again. Best wishes to you, I think this is a good sign that your doctors are now getting better handle on things.

                              Good Luck, I know this cannot be easy for you.


                              -Greg
                              Jukai '09 Dharma Name: Shinko 慎重(Prudent Calm)

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