Ankylosing Spondylitis continues as it has all my life, exercise almost daily good for both Illnesses. Ss I come off muscle relaxers, saliva glands working better, more concentration, better hand, eye, better hearing. Now have come down significantly, anxiety less, happiness returning. Long term illness improved, followed doctors advice. I am better.
Gassho
sat/lah
Zen Practice with Physical Illness or Disability
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This is a sticky topic.
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I have read that 59% of Ankylosing Spondylitis patients have mental illness. My first real diagnosis was psychotically depressed, and I was treated improperly with massive doses or Thorazine; when looking back I had I believe unipolar bipolar disorder. for many years misdiagnosed AS as besides, finally diagnosed at age 41 with AS and bipolar at age 60, always passed on with massive doses of antipsychotics which did not work for my physical illness, finally given Lithium and I responded, and after massive doses of nonsteroidal pain relivers, all of which destroyed my kidneys, finally in 2001 beginning proper treatment for my serious arthritis of my spine with the biological Enbrel, and finding a wonderful psychiatric hospital in 2010 diagnosed at an age when I am and was getting old, and realization of long growing AVM last year, finally freeing my thinking. I sought both pain relief and enlightenment to Find Shikantaza, and a teacher in Jundo. I am grateful for everything. Please Jundo, let this brief excursion into a history stand or strike it down or move it, but I request it is only understanding my journey to Ubasoku.
Gassho
sat/lah
calm poetryLeave a comment:
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Hi, I just wanted to add a note to this thread to say I'm so glad that Treeleaf is so accommodating to people with chronic illness and disability. That's been the main reason I haven't been able to join a sangha despite practicing for so long, and I've realised a lot of Buddhist spaces are quite excluding to disabled people (because of 'tradition?') It's so nice to feel that I'll be able to fully participate here despite my chronic illness and disability. Thank you, Jundo and everyone at Treeleaf.
Gassho,
Andrea
SatToday
If you ever have any questions, or need assistance with anything, please feel free to reach out. We are happy to help! [emoji120]
Gassho2, meian stlh
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Hi, I just wanted to add a note to this thread to say I'm so glad that Treeleaf is so accommodating to people with chronic illness and disability. That's been the main reason I haven't been able to join a sangha despite practicing for so long, and I've realised a lot of Buddhist spaces are quite excluding to disabled people (because of 'tradition?') It's so nice to feel that I'll be able to fully participate here despite my chronic illness and disability. Thank you, Jundo and everyone at Treeleaf.
Gassho,
Andrea
SatTodayLeave a comment:
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Faith that just sitting contains the whole universe and joyful bliss is only obscured by our own minds
Sat/lah
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I’m on Medication double duty. Seizure, and pain. Works for both. My AVM was masked when it began to grow. Cause seizure. I was experiencing paralyzed seizure. That’s what tipped off doctors. Then imagining was there showing AVM in 3d and enlarged. Looked like a spider except many legs. Thank you [emoji120] everyone for being there! Okay! I feel the foam where doctors placed the material.
Sat/ lah
_/\_
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Gassho
Jakuden
SatToday
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Hi Angel
If there is some agreement between neuro-atypical people here as to which resources are more accessible, we can look to providing a list for any new members coming with similar processing issues.
Please do share with us anything you find helpful. We try to be as inclusive as possible in making the teachings and practice work for people but some areas are currently more developed than others.
Gassho
Kokuu
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Zen Practice with Physical Illness or Disability
My apologies; I could have been more clear. Though I know that I am not the only one to use the phrase 'first language' in regards to the way that I process language rather than the language itself, it clearly is not something that has reached the social consciousness. I did not know that when I wrote it. I have often used the example, to good effect with both neurotypicals and neurodiverse folks, that the world is made up of PC's - and I am a Mac. I work perfectly fine, right up until I try to run 'Word for Windows' on my system - then it crashes.
It is unlikely to be coincidence that I gravitated to the simplicity of Zen over other branches. Still, part of my practice consists of a morning meditation followed by a short reading by the local Zen master. Favorite's of hers include some names that have appeared elsewhere in this thread - Darlene Cohen, Robert Aitken, etc. Sitting is vital, but this fruit is often out of my reach. Perhaps you, or someone else here, has had the opportunity to enter into a dharma dialogue with a teacher. I understand that many folks find value in this exchange, gaining clarity - whereas for me, I am being fed a word salad. A teacher might point to the moon differently if s/he pointing for a blind person.
Meian: I appreciate your kind offer, I'm sure I'll be in touch at some point.
I am humbled by the responses and the links. I have not yet had the opportunity to follow them but expect I shall, later today. Thank you to Kokuu, Hokan, and Meian.
Initially I found Joko Beck’s books to be the most clear and if not for them, the others I read (which included some of the most widely recommended) would probably not have led me down this path.
I also find Domyo Burke’s “Zen Studies Podcast” to be very helpful. She is very clear and uses good examples and metaphors, and the podcasts are categorized in such a way that you can organize listening in whatever way is most helpful to you.
Treeleaf is a treasure chest of teachings available in every form—video, Zazenkai, guest lectures, book club, and general teaching posts in bite-sized thought-provoking essays. Jundo has a way of explaining the teachings that penetrates even the most resistant of my brain states. His beginner series cemented many of the concepts (and non-concepts) for me. And he is incredibly dedicated to being available to directly answer questions on the forum as well as to helping us find accommodating ways to practice. In my first years here I would constantly dig through the archives and find things that resonated.
If nothing else, you have support and friends here [emoji847] and we can try to help in whatever way we can!
(Sorry for such a long post)
Gassho,
Jakuden
SatToday
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My apologies; I could have been more clear. Though I know that I am not the only one to use the phrase 'first language' in regards to the way that I process language rather than the language itself, it clearly is not something that has reached the social consciousness. I did not know that when I wrote it. I have often used the example, to good effect with both neurotypicals and neurodiverse folks, that the world is made up of PC's - and I am a Mac. I work perfectly fine, right up until I try to run 'Word for Windows' on my system - then it crashes.
Meian: I appreciate your kind offer, I'm sure I'll be in touch at some point.
I am humbled by the responses and the links. I have not yet had the opportunity to follow them but expect I shall, later today. Thank you to Kokuu, Hokan, and Meian.
satLast edited by Angel; 11-09-2021, 02:39 PM.Leave a comment:
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Angel,
Welcome to Treeleaf. I am meian, and autism level 1.
While I can't direct you to specific teachings or translate them for you, perhaps a discussion on how we understand these teachings (how we translate them) may be useful sometimes.
Written expression is also my primary communication. However, translation can also be difficult for me. I share this challenge.
You can message me if I can help with Treeleaf or autism and Zen.
Gassho meian st lh
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Doshin
StLeave a comment:
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Angel,
Welcome to Treeleaf. I am meian, and autism level 1.
While I can't direct you to specific teachings or translate them for you, perhaps a discussion on how we understand these teachings (how we translate them) may be useful sometimes.
Written expression is also my primary communication. However, translation can also be difficult for me. I share this challenge.
You can message me if I can help with Treeleaf or autism and Zen.
Gassho meian st lh
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I did wonder if that is what Angel meant, Hōkan.
Angel, there are perhaps teachings like that which work on a neurotypical mind. However, many Zen teachings also appear inpenitrable at first and many rely on symbols and images so I don't know if they would cut through neuro-atypical thinking. Other neuro-diverse folk in the sangha may be able to offer suggestions of teachings that have worked for them and if they have struggled in the same way.
In our school of Soto Zen, our primary teaching is that of 'just sitting' (Shikantaza), which goes beyond words and language. It is my hope that this practice is universally appropriate.
I did manage to find a couple of resources related to autism and Zen practice. I do not know if they are relevant or they may be stepping stones to something that is:
During my years, I had been stuck in a cycle of isolation and of desire. I’d wanted things I couldn’t have. I was invariably failing to search for things I
While researching autism and zen practice I found a link to an amazing book and woman and autistic zen circle ...
There is also an autism sitting group, Autsit, which means three times a month on Zoom: http://autsit.net/
Gassho
Kokuu
-sattoday/lah-Last edited by Kokuu; 11-08-2021, 11:14 PM.Leave a comment:
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I'm not sure, but I found this (densely written) explainer that may be what this is about: https://www.integratedtreatmentservi...peak-language/
TLDR: Some autistic folks communicate/think with things other than than the word symbols that many of the rest of us use.
SatLast edited by Hōkan; 11-08-2021, 10:44 PM.Leave a comment:
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