How to be Sick -- Chapter 18

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  • Meian
    Member
    • Apr 2015
    • 1683

    How to be Sick -- Chapter 18

    Disclaimer: This group is not part of the regular Treeleaf forum. To take part, you must have registered on the original thread (https://www.treeleaf.org/forums/show...ase-Read-Agree) and agreed to the group rules.
    __________________________________________________

    Hello everyone!

    Chapter 18 is… “And in the End…” almost, because Toni wraps up the book with the Appendices which Kokuu will cover after. Chapter 18 sums up the main themes of the book, plus an overview of how the Buddha handled pain, illness, and what metaphors and symbology we can draw from the monks’ lives and practices to use in our own perspectives of living with illness.

    This chapter is very short. Toni mentions the monks’ bowls and how they would beg for food each day. The monks’ daily food allotment was limited to whatever the villagers gave them each day – a few pieces or a full bowl. The analogy was that our “lot in life” is akin to the monks’ bowl – and whether we feel that we are blessed (or not so blessed!) with what’s in our bowls.

    She describes the Buddha’s equanimity with pain and illness, which she seems to draw great peace from his example. I appreciate the Buddha’s example, but I am not at the point of following it yet. While I have a high pain tolerance (so I’ve been told), I definitely let my frustration be known sometimes when I’ve had enough (only when alone or in certain company, however).

    She also gives a perspective on loneliness that I found very interesting, as it made me realize that she prefers to be around people more (social gatherings), whereas I very much prefer solitary, quiet activities, but I also enjoy small group settings on occasion. Her perspective in the chapter helped me to see illness from another angle – that one can experience loneliness in different ways, and illness can create loneliness differently from person to person. For a highly social person, it may be a more difficult experience than for someone like me. However, chronic illness still causes similar limitations, in that it can interfere with our ability to do what we love and/or need to do – regardless of our social leanings.

    Questions

    -- There weren’t specific questions in this chapter, but do you find the Buddha’s example helpful? Are there other teachers or role models that you refer to for inspiration?

    -- Do you find Toni’s suggestion of a “bowl of life” analogy helpful? Are there other analogies or metaphors for life with chronic illness that are useful to you?

    -- As caregivers, do you find these analogies useful? This chapter did not have much for caregivers, although Toni referred to her husband’s use of the same examples to describe their lives together. Do you find that as well, or do you find other metaphors are more useful to you?

    —Overall, have you found this book to be helpful to you? Toni has other books as well – do you think they might be helpful? Have the exercises and practices been useful for your life or illness? If you could ask Toni anything, or make suggestions, what would they be? Any “final” thoughts before the Appendices and suggested practices next week?

    gassho, meian st lh
    鏡道 |​ Kyodo (Meian)
    "Mirror of the Way"
    visiting Unsui, not a teacher
  • Naiko
    Member
    • Aug 2019
    • 870

    #2
    While I may aspire to the Buddha’s wisdom and equanimity, I find Toni’s example very helpful and relatable. I am grateful for her honesty in relating her struggles and frustrations, her low moments. I can see myself in those instances. I stumbled on some similar strategies on my own and will continue to draw upon her suggestions.

    I like the bowl metaphor because it reminds me that we don’t really control what we get and that it changes. It also reminds me that in Returning to Silence, Dianin Katagiri Roshi says that a ceramic bowl is beautiful because it will break. “The life of the bowl is always existing in a dangerous situation.” I also liked the “why not me” anecdote.

    I’m rather curious to read what other Buddhist writers have to say about illness and aging.
    Gassho,
    Naiko
    st lah

    Comment

    • Kokuu
      Dharma Transmitted Priest
      • Nov 2012
      • 7323

      #3
      Thank you, Meian, for closing the main part of the book with this chapter.

      I agree with Naiko that although the Buddha is an aspirational figure, I find it much more helpful to hear about other more relatable people who have dealt with similar situations and present both the things that have worked for them and strategies or times that have worked less well. Recently, I really enjoyed the book Zen Teachings in Challenging Times which is an edited collection of Zen teachers describing how they worked with difficult situations.

      I like the bowl metaphor too. Similarly, I remember when Edward Espe Brown came to talk at Treeleaf he talked about everytime he made biscuits they were different and he learned to accept each batch of biscuits as they are rather than compare them to other days or to commercial bought biscuits. He came up with the phrase "What will today's biscuits taste like?" which I really like as a metaphor. My friend Irina, a one time Treeleaf member, and the reason for me being here, also had the phrase "This is what it feels like to be human" which I have used a lot to remind myself this is normal and not something we have to get rid of.

      Naiko, Susan Moon wrote a Zen book on aging called This is Getting Old which I haven't read but might be what you are looking for. Other books that I like include Turning Suffering Inside Out by Darlene Cohen who had rheumatoid arthritis, and the edited volume Being Bodies, which is about the female experience of being a human with a body but I have found a lot of wisdom in there for all genders in terms of illness, aging, sexuality and more.

      Gassho
      Kokuu
      -sattoday/lah-

      Comment

      • Shonin Risa Bear
        Member
        • Apr 2019
        • 966

        #4
        The bowl as metaphor, both in terms of its being empty or full just as it is, and strong or fragile just as it is (and whole or broken just as it is!) has been one the best finds for me in this discussion.

        Over time I have found most teaching communication, whether in the form of music and dance (opera, ballet, oratorio, cantata), fiction or nonfiction, theater, movies, etc. to be about loss and dealing with loss as "growing up."

        Here for example is a passage from The Yearling by Marjorie Kinnan Rawlings:

        “You've seed how things goes in the world o' men. You've knowed men to be low-down and mean. You've seed ol' Death at his tricks...Ever' man wants life to be a fine thing, and a easy. 'Tis fine, boy, powerful fine, but 'tain't easy. Life knocks a man down and he gits up and it knocks him down agin. I've been uneasy all my life...I've wanted life to be easy for you. Easier'n 'twas for me. A man's heart aches, seein' his young uns face the world. Knowin' they got to get their guts tore out, the way his was tore. I wanted to spare you, long as I could. I wanted you to frolic with your yearlin'. I knowed the lonesomeness he eased for you. But ever' man's lonesome. What's he to do then? What's he to do when he gits knocked down? Why, take it for his share and go on."
        One could say Buddha's story fits in with this pattern. He gets out and sees how it is, and realizes there are no honest interpretations that will make him or anyone an exception to the rule (second law of thermodynamics) and so sets about building a system for teaching acceptance of said rule. A system for growing up.

        Prajnaparamita is a logical way of putting it. It could be translated as "the great wisdom concerning how nothing ever stays the way you want it." Mmkay, I'll try some of that. _()_

        Thank you, everyone. Nine bows.

        gassho
        d shonin sat and lah this morning
        Visiting priest: use salt

        Comment

        • Yokai
          Member
          • Jan 2020
          • 507

          #5
          Prajnaparamita...could be translated as "the great wisdom concerning how nothing ever stays the way you want it."


          Thank you Shonin!

          Gassho, Yokai sat/lah

          Comment

          • Onka
            Member
            • May 2019
            • 1577

            #6
            -- There weren’t specific questions in this chapter, but do you find the Buddha’s example helpful? Are there other teachers or role models that you refer to for inspiration?

            Yes I find the Buddha's example helpful. I find them to be great teachers of humility.

            -- Do you find Toni’s suggestion of a “bowl of life” analogy helpful? Are there other analogies or metaphors for life with chronic illness that are useful to you?

            Yes I do find the "bowl of life" analogy helpful but wish my bowl to be filled from time to time.

            -- As caregivers, do you find these analogies useful? This chapter did not have much for caregivers, although Toni referred to her husband’s use of the same examples to describe their lives together. Do you find that as well, or do you find other metaphors are more useful to you?

            Wearing my caregiver hat I don't find the analogies helpful as I am a "fixer" and I am unable to make my partner's life easier when I can't even make my own easier. I sit daily with the hope of increasing equanimity around these things.

            —Overall, have you found this book to be helpful to you? Toni has other books as well – do you think they might be helpful? Have the exercises and practices been useful for your life or illness? If you could ask Toni anything, or make suggestions, what would they be? Any “final” thoughts before the Appendices and suggested practices next week?

            Overall I have found the book helpful. The practices and exercises have been helpful too. In saying that, it took a second reading for me to connect with the book overall, leaving my own prejudices towards privileged middle class folk at the door.

            Gassho
            Onka
            st
            穏 On (Calm)
            火 Ka (Fires)
            They/She.

            Comment

            • Meian
              Member
              • Apr 2015
              • 1683

              #7
              I was with my father at the hospital yesterday as he had a catheterization procedure done. He is in his late 70s and has a few things going on with him.

              My stepmother looks after him. I had one impression of their arrangement, until I took him back home, and then I got a glimpse of how much deep resentment has built up over the years. When one spouse is burned out and angry, and the other spouse gives a different face to the world (even other relatives), even an adult child gets stuck in the middle. I wondered if my younger stepsisters had been caught in the crossfire also.

              Observing my stepmother and father gave me a very different perspective on disability and unrelenting caregiving. I was pulled into the resentment and anger (nearly two decades' worth). I didn't argue with her, she really just needed to unload so much hurt and anger, it wasn't really about me. I gave her a sincere apology anyway -- she deserved one, she needed some acknowledgement and healing.

              What I observed was how 'we' (my family, our ancestors, etc) tend to get so caught up in our respective roles, narratives, assigned identities, that we never stop playing the parts, long after these masks cease to fulfill any useful purpose in our lives. And we keep reacting to each other with the same scripts, and it goes on. So my stepmother was asking me for help, but she wasn't sure how to, only that she's exhausted.

              But I have seen the keys to this in Toni's book also -- both as a sick person and as caregiver. Even to do one thing different, ask a different question, reframe a situation. The tools are there. So I will try some of the tools in Toni's book on my family's civil war/impasse, because this shouldn't be happening at this stage of their lives.

              Gassho2, meian st lh

              Sent from my SM-G975U using Tapatalk
              鏡道 |​ Kyodo (Meian)
              "Mirror of the Way"
              visiting Unsui, not a teacher

              Comment

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