How to be Sick - Chapter 16

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  • Meian
    Member
    • Apr 2015
    • 1686

    How to be Sick - Chapter 16

    Disclaimer: This group is not part of the regular Treeleaf forum. To take part, you must have registered on the original thread (https://www.treeleaf.org/forums/show...ase-Read-Agree) and agreed to the group rules.

    __________________________________________________

    Hello everyone!

    Chapter 16 discusses “communicating with care” – an in-depth review of what the Buddha means by “right speech” when it comes to living with chronic illness. This chapter kind of held a mirror to my face, as I am guilty of doing much of what Toni warns against in this chapter; however, some of it I had also become more aware of in recent months and I have been trying to improve my communications. So, good timing!

    This topic is essential because, when we practice communicating with care, we are better able to nurture more symbiotic relationships and fewer “one-way” conversations.

    It has been said many times that, in conversations, we do listen to respond, not to understand. In other words, when we ‘listen’, we’re really thinking of what we want to say to the person, and not focusing and receiving the words the person is actually saying.

    Toni opens this with the Buddha’s admonishment on ‘right speech’ being comprised of five qualities.

    [I]Right speech is:
    1) Truthful
    2) Spoken with good will (intent)
    3) Spoken beneficially (in a good manner)
    4) Spoken affectionately (with kindness)
    5) Spoken at the right time[/I]

    Toni then explains that Right Speech is generally shortened to one sentence:
    “Speak only when what you have to say is true, kind, and helpful.”

    I nearly always fall short of this rule. (My mouth usually opens before my brain engages.)

    Quoting the Zen poet Ryokan, Toni segues the precept into both a question and a practice, asking “how can we forgive ourselves when we fall short” by using the gentle phrase of “Take care not to ….”

    What can I take care not to do, in order to practice Right Speech?

    She gives some examples of this intention which, sadly, hit me between the eyes. Why haven’t I heard back from so-and-so in a certain amount of time? Why hasn’t this person called? I should invite that person over for lunch, I’m sure they’ll want to know all about how we (I) are doing. The person emails, the friend calls, the person visits for lunch …. How do I respond? Without practicing conscious intention and reflecting on Right Speech, I fall into old habits – thinking on my response, my interests instead of focusing on their words, their intentions, and the conversation flips to my health and my concerns.

    How to change the narrative of speech without speech itself becoming the focus of intent? Toni makes the following suggestion to transition our focus without making our illness the focus: to replace the intention to confront with the intention to inquire, so the communication can be kind and helpful – ask how they are doing, how are things, and let the question be the question, simply listen. Then we may learn what has been happening in our friend’s or loved one’s life (celebrations, illness, life changes, etc.), instead of immediately jumping to our own issues and daily focus.

    The danger we face in living with chronic illness, is that it becomes not only our sole focus, but that we can start to assume that it’s everyone else’s only interest also. We can start to believe that others are also interested in every detail, every appointment, every minute change we experience, medications, symptoms, diets, and new developments. I tend to get so caught up in medical issues and frustrations, that sometimes it becomes my only focus and I often forget that others have their own lives, joys, concerns, and activities, and aren’t simply repositories for my daily living with illness.

    Questions

    -- There weren’t specific questions in this chapter, but do you find it easy to talk with loved ones and friends apart from your health concerns, or is it a challenge for you to maintain right communications that don’t always involve your illness?

    -- Do you find Toni’s suggestions for practicing Right Speech helpful? Have you used them before? Do you have other practices for Right Speech that are helpful in your practice?

    -- As caregivers, do these practices help you? Are there other versions that work better? Do you find that your challenges are the same, or do you have communication needs that are not being met in this version of the Precept? What suggestions or questions do you have about communication as caregivers?

    -- Has your communication improved or changed since your illness? What advice would you give to someone who is just starting their journey with chronic illness or disability? Is there advice you wish someone would have given you?

    gassho, meian st lh
    鏡道 |​ Kyodo (Meian)
    "Mirror of the Way"
    visiting Unsui, not a teacher
  • Kokuu
    Dharma Transmitted Priest
    • Nov 2012
    • 7316

    #2
    Thank you, Meian!

    I think my communication with friends has definitely changed since I was first ill and I ran up against the same as Toni expressed in being surprised at people not wanting intricate details of my latest treatment ideas and plans! Similarly, I see a lot of people in chronic illness groups on Facebook professing disappointment that families and friends do not react enthusiastically to posts about their illness and illness advocacy but instead heap likes upon a picture of their cat!

    My realisation, as Toni's, is/was that people have a lot of their own stuff going on and don't necessarily have the bandwidth to take on large amounts of details about what is going on for someone else. Likewise, on social media, many people go there to relax and unwind after work and are more after pictures of cats being cute than calls to change government policy on health care.

    I have a number of friends with my illness who I can talk about illness if I need and vice-versa, but also I have friends both here in the sangha and elsewhere who talk about other things and don't mention illness. Both are good but even with sick friends there is a limit to which we can hear about each other's daily struggles.

    One aspect of communication which I don't think Toni mentions but I find to be incredibly important when dealing with healthcare professionals, support workers and even friends and family is the ability to kindly and firmly set boundaries. Especially when we practice Buddhism, we can feel that we have to be there for people and always be kind. However, I have learned through hard experience that sometimes the best thing to do for your body is to learn to say no, to state what you cannot do, and to be clear when medical advice or conduct is unacceptable. This I find can be done within Right Speech and I imagine is something that almost everyone with chronic illness has had to learn quite early on. And, with the mention of noble silence, knowing that it is not necessary to always respond to other people's ideas and suggestions about your illness (except maybe to say 'thank you for your thoughts') is well worth practicing!

    I am interested to hear other people's thoughts on this.

    Gassho
    Kokuu
    -sattoday/lah-

    Comment

    • Shonin Risa Bear
      Member
      • Apr 2019
      • 939

      #3
      I'm a bit of a reductionist, so I roll up the eightfold path into "right action," including the precepts as mostly "right inaction." Not to say or not to do, when it's unhelpful, is an old principle in Buddhism, as when Bodhidharma (attr.) says that the first of the four practices is "Do not seek justice for yourself" (Presumably I can seek it for others, but carefully!).

      My spouse and I are members of a Friends Meeting and spent decades in ecumenical activities, where much could be said if much was left unsaid.

      The people who were best at this kind of bridging, it seemed to me, were the ones with fewest possessions. Peace Pilgrim comes to mind, as does Charles Gray. Charles was an interesting case. A millionaire by inheritance, he gave it all away and went to spend quite a few years as a Witness for Peace in Nicaragua. When he got back, he moved into a tiny room with a coffee pot and a single burner hot plate, trying to live on what he had determined was the world average income for a human being. Having shed his stake in things that might support, directly or indirectly, white supremacy, he was a terrific listener and a true exemplar of the way of peace.

      When Charles began dying of cancer, it occurred to him to attend his own funeral, so about a hundred of us gathered at the Meeting House and he was wheeled in from a hospice center on his deathbed, from which he delivered a little homily on "intentional poverty is the way to peace." He died, happy in the choices he'd made, about a week later. I think about him when I read the Eight Realizations of Great Beings:

      The Second Realization: Excessive desire is suffering. Birth, death, and weariness in life all originate from greed and desires. Desiring less, being empty of effort, body and mind are at ease and free.
      Dunno if this is what Chapter 16 exactly calls for in a response, but this is what occurs to me to say at this time. _()_

      gassho
      d shonin sat lah today
      Visiting priest: use salt

      Comment

      • Onka
        Member
        • May 2019
        • 1576

        #4
        -- There weren’t specific questions in this chapter, but do you find it easy to talk with loved ones and friends apart from your health concerns, or is it a challenge for you to maintain right communications that don’t always involve your illness?

        I find it easy to speak with my partner about my health but I am often unkind in my language regarding my own health. I get frustrated regularly when people don't take the time to dig deeper into both my health and my partners beyond "how's it goin'?" which is akin to the English greeting of "alright" which is not really a question

        -- Do you find Toni’s suggestions for practicing Right Speech helpful? Have you used them before? Do you have other practices for Right Speech that are helpful in your practice?

        Yes I do find them helpful. I ask my partner to remind me when I become frustrated with my own health and wellbeing. By asking this of my partner I've noticed that her communication style has become a little more gentle.

        -- As caregivers, do these practices help you? Are there other versions that work better? Do you find that your challenges are the same, or do you have communication needs that are not being met in this version of the Precept? What suggestions or questions do you have about communication as caregivers?

        My partner sees and hears my efforts daily. This helps her to express her challenges in language that is kinder to herself.

        -- Has your communication improved or changed since your illness? What advice would you give to someone who is just starting their journey with chronic illness or disability? Is there advice you wish someone would have given you?

        My communication style used to be one of defiance. It was both abrasive and confrontational. It probably still is for most folk by the intention is far more gentle in nature. I wouldn't give advice to anyone who is starting on their own journey with chronic illness or disability as their journey is their own. If asked, I would share what works for me but wouldn't try to sell anything to them. I think that many people, from friends and family to professionals of various kinds have for well over 25 years offered or tried to insist on me taking their advice but I wasn't ready to take it. This is my journey and I experience it my way. Thankfully I found it in the Buddha Dharma a couple of years ago but I'm very much still in the infancy of my lived experience through this less aggressive lens.

        gassho
        Onka
        st
        穏 On (Calm)
        火 Ka (Fires)
        They/She.

        Comment

        • Meian
          Member
          • Apr 2015
          • 1686

          #5
          Gassho2, meian st lh

          Sent from my SM-G975U using Tapatalk
          鏡道 |​ Kyodo (Meian)
          "Mirror of the Way"
          visiting Unsui, not a teacher

          Comment

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